@Kelly149
Thanks Kelly, I am showing all these responses to Ade and although we have a large circle of friends, such heartfelt messages from people we have never met from around the world do mean a lot.
When you have a long term illness (and I am sure other long term sufferers will agree with me here) you have to 'suffer in silence'!
If you get run over by a car, fall off the ladder, have a gall bladder removed, get hit in the ear with a golf ball....everyone is vitally interested in all the gritty details! It is an event that time heals, and we all move on.
But people do tire over time asking the same old questions......'how are you feeling'.....they don't really want to know, but feel they should ask. Even had one woman say one night..."Oh don't talk about that, it puts a downer on the night"! So you avoid talking about it, and in public, make as many of the symptoms disappear to some extent....and you suffer in silence.
You also have to have a very black sense of humour to see you through! One night we were out at the movies with friends and our seats involved the climbing of a curved flight of stairs and everyone could see Ade struggling with the stairs and the handrail and you could see her personal effort. Ade is fiercely independant and others discomfort was evident so I said in a reasonably loud voice..."Oh come on you old cripple"!! Everyone had a disgusted chuckle and it relieved the tension, took the focus off Ade and she was able to get on with what she had to do.
I bring that up Kelly because all your comments make it real for us to have other people actually talk about it to us instead of sweeping it under the rug!
I will over time answer all these comments because you all deserve it, you have all been so kind!
Cheers.....Rob